Program Co-Sponsors Fourth Annual Neurofibromatosis Family Day

Panelists (L to R) Amy Durand, MD, Virginia Harrod, MD, PhD, Chelsey Ortman, MD, Moise Levy, MD, Neha Puar, MD, Rachel Bridges, PhD, and Emily Greenspahn, PhD answering questions — *Panelists (L to R) Amy Durand, MD, Virginia Harrod, MD, PhD, Chelsey Ortman, MD, Moise Levy, MD, Neha Puar, MD, Rachel Bridges, PhD, and Emily Greenspahn, PhD*

Patients and family members from throughout Central Texas gathered at Dell Children’s for the fourth annual Neurofibromatosis Family Day Meeting on November 8. Co-sponsored by the Dell Children’s Neurofibromatosis Center of Excellence, UT Health Austin Pediatric Neurosciences at Dell Children’s, and the Children’s Tumor Foundation, this free meeting educated patient families on community resources and the latest developments in clinical care and research through bilingual presentations and Q&A sessions.

Rachel Bridges, PhD and Emily Greenspahn, PhD lecturing — *Rachel Bridges, PhD and Emily Greenspahn, PhD*

Presentations spanned topics from neuropsychological monitoring by neurology assistant professors Emily Greenspahn, PhD, and Rachel Bridges, PhD, to the NF1 disease course by neurology assistant professor Chelsey Ortman, MD. Children could participate in the educational sessions with their families or in science-themed activity workshops.

The Dell Children’s Neurofibromatosis Clinic is the only Central Texas member of the NF Clinic Network of the Children’s Tumor Foundation. It provides accelerated access for patients with neurofibromatosis as well as comprehensive, multidisciplinary care in a family-centered environment. With subspecialty expertise, the clinic is committed to providing the best care at each stage of the disease and offers transitional care into the adult NF program.

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