Ongoing and Active

Pediatric neuroscience projects or studies, listed out by type:

Clinical Trial Sponsored Projects

• BHV 2000-301 SMA – Biohaven
  • PI: Dr. Veda (enrolling)
• Early Access Program with Arimoclomol for the Treatment of Niemann-Pick disease Type C in the US – Arimoclomol
  • PI: Dr. Kristina Julich
• Genentech SMA
  • PI: Dr. Veda (enrolling)
• Responding with Evidence and Access for Childhood Headaches (REACH)
  • PI: Dr. Sara Pavitt (enrolling)
• Rimegepant for the Acute Treatment of Migraine 311 – Pfizer
  • PI: Dr. Sara Pavitt (enrolling)
• Rimegepant for the Acute Treatment of Migraine 312 – Pfizer
  • PI: Dr. Sara Pavitt (enrolling)
• Ubrogepant in the Acute Treatment of Migraine 305- AbbVie
  • PI: Dr. Sam Irwin (enrolling)
• Ubrogepant in the Acute Treatment of Migraine 306- AbbVie
  • PI: Dr. Sam Irwin (enrolling)

Non-Clinical Trial Sponsored Projects

• Adolescent TBI Online Therapy
  • PI: Dr. Cynthia Austin
• Epidet Epilepsy Algorithm Creation – Silabs
  • PI: Dr. Dave Clarke
• Parent Outcomes in Pediatric Neuropsychology
  • PI: Dr. Cynthia Austin
• Validation of the open-access CRIDI assessment for Latino children in the U.S.
  • PI: Dr. Audrey Brumback

PI-Initiated Non-Sponsored Studies

• Abolishing Photoparoxysmal Response Utilizing Blue Reflective Sunglasses
  • PI: Dr. Daniel Freedman
• DEE-P Connections Survey
  • PI: Dr. Daniel Freedman
• Delirium in Children with Acquired Brain Injury (pending)
  • PI: Dr. Eman Rettig
• Depression Screening Quality Improvement in the Headache Clinic
  • PI: Dr. Sara Pavitt
• Effects on Socioeconomic Factors on Access to Epilepsy Care
  • PI: Dr. Rosario DeLeon
• Mental Health Screener (pending)
  • PI: Michelle McCartney
• New Onset Epilepsy Provider Survey
  • PI: Dr. Nancy Nussbaum
• Pediatric Headache Center QI Survey
  • PI: Chelsea White
• Pediatric Neuroscience PNEE Clinic Survey (pending)
  • PI: Dr. Daniel Freedman
• Prevalence and Characteristics of Children with Epilepsy in a Pediatric Primary Care Comprehensive Clinic
  • PI: Dr. Dave Clarke
• Tracking Patient Outcomes – FNSD (pending)
  • PI: Dr. Glendaliz Bosques
• VECTOR-RA
  • PI: Dr. Dave Clarke
  • Phase 1: Deficiencies
  • Phase 3: Community Access

Multisite Registries

• MRI-Guided Laser Interstitial Thermal Therapy (MRgLITT) Registry
  • PI: Dr. Dave Clarke
• Pediatric Epilepsy Research Consortium
  • PI: Dr. Dave Clarke
• Pediatric Spine Study Group
  • PI: Dr. Omar Iqbal

Local Databases

• Clinical Outcomes in Pediatric TBI
  • PI: Dr. Cynthia Austin
• Comprehensive Epilepsy Center Registry
  • PI: Dr. Dave Clarke
• Epilepsy Imaging Registry (pending)
  • PI: Dr. Clifford Calley
• Headache Center Database
  • PI: Dr. Sara Pavitt
• Ketogenic Therapies Database
  • PI: Dr. Kristina Julich
• Neurodevelopment Program Clinical Data Registry (pending)
  • PI: Dr. Jessica Pliego
• Neurogenetics Registry (pending)
  • PI: Dr. Kristina Julich
• Neuroimmunology Clinic Registry
  • PI: Dr. Manikum Moodley
• Neuropsychological Functioning in Pediatric Epilepsy (pending)
  • PI: Dr. Jeffrey Titus

Last Updated: [04/10/24]