Pediatric neuroscience projects or studies, listed out by type:
Clinical Trial Sponsored Projects
- BHV 2000-301 SMA – Biohaven
- PI: Dr. Veda (enrolling)
- Early Access Program with Arimoclomol for the Treatment of Niemann-Pick disease Type C in the US – Arimoclomol
- PI: Dr. Kristina Julich
- Genentech SMA
- PI: Dr. Veda (enrolling)
- Responding with Evidence and Access for Childhood Headaches (REACH)
- PI: Dr. Sara Pavitt (enrolling)
- Rimegepant for the Acute Treatment of Migraine 311 – Pfizer
- PI: Dr. Sara Pavitt (enrolling)
- Rimegepant for the Acute Treatment of Migraine 312 – Pfizer
- PI: Dr. Sara Pavitt (enrolling)
- Ubrogepant in the Acute Treatment of Migraine 305- AbbVie
- PI: Dr. Sam Irwin (enrolling)
- Ubrogepant in the Acute Treatment of Migraine 306- AbbVie
- PI: Dr. Sam Irwin (enrolling)
Non-Clinical Trial Sponsored Projects
- Adolescent TBI Online Therapy
- PI: Dr. Cynthia Austin
- Epidet Epilepsy Algorithm Creation – Silabs
- PI: Dr. Dave Clarke
- Parent Outcomes in Pediatric Neuropsychology
- PI: Dr. Cynthia Austin
- Validation of the open-access CRIDI assessment for Latino children in the U.S.
- PI: Dr. Audrey Brumback
PI-Initiated Non-Sponsored Studies
- Abolishing Photoparoxysmal Response Utilizing Blue Reflective Sunglasses
- PI: Dr. Daniel Freedman
- DEE-P Connections Survey
- PI: Dr. Daniel Freedman
- Delirium in Children with Acquired Brain Injury (pending)
- PI: Dr. Eman Rettig
- Depression Screening Quality Improvement in the Headache Clinic
- PI: Dr. Sara Pavitt
- Effects on Socioeconomic Factors on Access to Epilepsy Care
- PI: Dr. Rosario DeLeon
- Mental Health Screener (pending)
- PI: Michelle McCartney
- New Onset Epilepsy Provider Survey
- PI: Dr. Nancy Nussbaum
- Pediatric Headache Center QI Survey
- PI: Chelsea White
- Pediatric Neuroscience PNEE Clinic Survey (pending)
- PI: Dr. Daniel Freedman
- Prevalence and Characteristics of Children with Epilepsy in a Pediatric Primary Care Comprehensive Clinic
- PI: Dr. Dave Clarke
- Tracking Patient Outcomes – FNSD (pending)
- PI: Dr. Glendaliz Bosques
- VECTOR-RA
- PI: Dr. Dave Clarke
- Phase 1: Deficiencies
- Phase 3: Community Access
Multisite Registries
- MRI-Guided Laser Interstitial Thermal Therapy (MRgLITT) Registry
- PI: Dr. Dave Clarke
- Pediatric Epilepsy Research Consortium
- PI: Dr. Dave Clarke
- Pediatric Spine Study Group
- PI: Dr. Omar Iqbal
Local Databases
- Clinical Outcomes in Pediatric TBI
- PI: Dr. Cynthia Austin
- Comprehensive Epilepsy Center Registry
- PI: Dr. Dave Clarke
- Epilepsy Imaging Registry (pending)
- PI: Dr. Clifford Calley
- Headache Center Database
- PI: Dr. Sara Pavitt
- Ketogenic Therapies Database
- PI: Dr. Kristina Julich
- Neurodevelopment Program Clinical Data Registry (pending)
- PI: Dr. Jessica Pliego
- Neurogenetics Registry (pending)
- PI: Dr. Kristina Julich
- Neuroimmunology Clinic Registry
- PI: Dr. Manikum Moodley
- Neuropsychological Functioning in Pediatric Epilepsy (pending)
- PI: Dr. Jeffrey Titus
Last Updated: [04/10/24]