The purpose of the study is to understand more about eating, physical activity, and health behaviors in Latino families who have a child with a developmental disability. We are doing this study because children with developmental disabilities are at high risk of being overweight and their family members may also have health needs. We do not know enough about the health of Latino children with developmental disabilities and their families, or how to support them. This study will help us learn about you and your child’s health so we can create better ways to support the health of Latino families like yours.
Frequently Asked Questions
Who may participate in the study?
Latina mothers or female guardians who have a child with a developmental disability (autism, Down syndrome, or intellectual disability) who is able to walk and between the ages of 6-17. The child will also be a participant.
What will you ask me to do?
You will be asked to complete three telephone interviews. At these interviews you will answer questions about you and your child’s health Between the second and third interview you and your children will wear a small item on your waistband that tells us how much you move during the week. You will be asked to wear the activity monitor for 7 days, 12 hours a day. The interviews will take 2 hours each for a total of 6 hours. You will receive $25 for your time after each visit for a total of $75
What kind of questions will we ask?
We will ask questions about you and your child’s health, eating habits, physical activity levels, your family support and what it is like at your home.
What are the benefits and risks of participating in this study?
There is a risk that you might experience the inconvenience of arranging appointments or may feel emotional sharing your personal experiences. You may have a small amount of discomfort wearing the accelerometer (this is a small item that goes on your waistband and helps us know how much you and your child move).
Although you will not directly benefit from being in this study, others might benefit because this study will help us know how to better support the healthy habits of families like yours.
How will the results of this study be used?
We will analyze the data collected about eating, physical activity, and health behaviors, so that we can create better ways to support the health of Latino families like yours. We will share this information through reports with researchers, policy makers, organizations, and families.
Are You Interested in Participating in the PODER Study?
Do you have a child with autism, down syndrome, or intellectual disability who can walk and is between 6 and 17 years old? Are you and your child Latino/Hispanic ethnicity?